For those of you who think I was dead because Ii had not blogged in a while I am still here.. I have that blog in the can so to speak and it will come out posthumously I have a friend coming over to post push the right buttons. For those of you who think I aI am not. The day however is bass ackwards. When last we left off I had just gotten both Susan and myself signed up for Medicaid under Obama care. Susan had received a favorable decision on her pending ssi claim they were sending it to the local social security office for a once over. that was on 11/05/2013. here it is almost a month later and I still had heard nothing so I called the local office and they said I had a new case officer. My wife had the the same case officer for over a year and never spoke to him live.I spoke to him two or three times that was back before I realized you have to write down day,time month and year of every interaction you have with a real person.. The first time i called the national number after I received notification that she was getting a favorable judgement I was told that my wife’s case was still pending I thought my head was going to explode.that was on the 6th of November. I called them back. When I called them back I do not mean that it was a easy process by to accomplish If you do not get switched to a different department an hour and twenty minutes. If you get switched two hours. In the last month I have used up 1000 minutes of time on my cellular phone and ten dollars worth of skype time at 1.7 cents a minute at any rate that is a lot of time on the telephone. It turns out that I had not signed up for Medicaid and the deportment of health and welfare does not take Medicaid so I have learned I believe that my wife Susan will get Medicaid on the first of January I will get it a yet to be decided date..
My guess is I will probably get fined for not having insurance in a timely manner. So lets summarize Susan and Patrick in theory will get Medicaid which is state run on January first for Susan She should be getting her official notification in about ten days I shall get mine some time after that. The ssi i judgement in Susan’s favor her new case officer will talk to her tomorrow or when she decides the proper amount of time has been used up to us knot who the alpha dog in this mess is.where we are now.I found out the navigators who help you navigate through this nightmare have four hours of training the health and welfare people have 8 hours of training even they are state and the Obama care people have fours of training and the relationship between the state and federal is adversarial
I am going stop here now because I t is just a blog and even I am beginning to lose interest. In my next post we will discuss why using the local charity hospital is a mistake. In Las Vegas that hospital is UMC I am not dyslexic things are just not done in the right order I had a perfectly good reason for not blogging but I took my eyes off the road and things got worse not fatal but in the Ray Charles should never drive category. Yes I know he has passed letting a blind dead guy drive a car is pretty bad.
It turns out that I qualify for ,medicaid as dose my wife. As of January 1st we enter the wonderful world of welfare not quite Disneyland but it will have to do for the time being. My wife’s doctor all take medicaid so I am happy. and so is she. Now if my kidneys will hold up to January first I can get back to dragging this whole dying thing out as long as possible and harass some of the bureaucrats who were mean to me a good working over. It is my wedding 25th anniversary on Monday like to see 26th
not quite .
I went to the library yesterday to meet my navigator through the affordable care act opus. Navigators are specially trained people who can help you fill out the 64 page application, After getting some basic income statistics he said not to worry I did not really need to sign up because my house hold income was so low that I would automatically qualify for medicaid
Just make sure I had a medicaid request as they were not just going to send me a card and start asking who did I want to sign up with.
I go down to welfare office foolishly thinking that would give me the proper form yet somehow in the back of my mind I knew it was not going to be what happend.. The back of my mind was correct the department of health and welfare services does not take medicaid applications any more they have to come from NV health link. which wants you to create a online screen name and pass word i did that but they were suppose to send me a link to verify that no robots were hard at work defrauding the system only they did not send
me the link for the code to activate my account. What is more bizarre there is no way to fix the situation and so I had to email the problem and wish or hope or whatever a person does when they are trying to get through a massive bureaucracy
Still all in all it was not too bad of a day I met a really nice lady from the Nathan Adelson hospice to find out what they could do from their end . Limited what they can do I basically had to give up and they would take care of everything but I had to do my best to die in six months all there were some things they could do now. like the next time I had to have a procedure done that drains the fluid which collects around my midsection they left what is a pour spout in Then the hospice would send a nurse by to drain me. Last time they took out 16 liters and on that happy note
DEAD MAN OUT
My apologies my blogs seem to be filled with links to stuff I neither got paid for or gave permission to embed in my blog As you can no doubt tell from my writing style I am new to this I will fix as soon as possible
Dead man out
“To die or not to die that is the question” it really is. I need a new liver and new kidneys and there is a whole bunch of maybes in there. Even if someone were foolish enough to put me on a donor list I am 64 years old and what do I have to contribute to society. I made a mess of things the first time around no real reason to believe that another spin of the wheel would yield any more promising. I received a letter from my gastroenterologist that I need a new liver only they do not do that in Las Vegas, and my nephrologist says I will very soon need new kidneys. All I want is early admittance to Medicare but up until now I have not been considered sick enough. I really just need help with the medicine and seeing doctors who can order blood work. I a meeting set up with a advocate to help me sign up for the affordable care act as I said earlier in the blog my only real goal is to get my wife some sort of health care. my ship has definitely sailed. I have a special meeting set up with the local social security office to achieve that goal.
The medicine is killing me even with a medical discount cards giving me 60% off some of my more important medicines and there still$112.00 dollars a pop that is lots of greenbacks. but I use what ever resources I have.
My closing thoughts are this do not give over to despair because if you let them things will get worse. In Las Vegas the agency that can set you up with most likely avenues for relief is
OFFICE FOR CONSUMER HEALTH ASSISTANCE
555 EAST WASHINGTON AVE SUITE 4800
LAS VEGAS, NEVADA 89010
I have found everyone there friendly and committed to their work
AS EVERYONE WHO HAS A SAMS CLUB CARD KNOWS THERE BIG AND JUST TO GET YOU TO GO DOWN A DIFFERENT ASILE THEY MOVE THINGS AROUND QUITE AT BIT. THEY HAVE THIS SERVICE CALLED CLICK AND PULL. SET UP AN ACCOUNT AND THEN AS LONG AS YOU MAKE YOUR ORDER BY 5:OO PM YOUR ORDER WILL BE READY BY OPENING TIME THE NEXT DAY AND YOU CAN PAY FOR IT WITH CASH OR EBT AS LONG AS THE STUFF YOU ORDER IS WITHIN THE EBT GUIDE LINES THAT YOU WILL HAVE TO PAY CASH. IF THERE ARE PERISHABLE ITEMS THEY WILL HAVE TO CHASE THME DOWN BUT ALL IN ALL A MUCH EASIER ON THE LEGS THEN THEY HELP YOU TAKE IT OUT TO THE CAR. TAKE YOUR HANDICAPPED PLACARD WITH YOU WHERE ANY ONE CAN SEE IT I HAVE VELCROW ON THE BACK OF MINE SO I CAN STICK IT TO MY CANE
FINALLY IF YOU ARE PRETTY MUCH HOME BOUND AND CONDUCT A LOT OF YOUR AFFAIRS ON THE COMPUTER AS I DO TAKE THE TIME TO WIRITE DOWN ALL YOUR PASSWORD ACCOUNTS ON A SEPARATE PIECE OF PAPER AND NEVER LEAVE ANY APPLICATION SIGNED IN OR SET TO REMEMBER YOUR PASS WORD. IT IS A PAIN BUT IT MAKES IT EASIER TO GAIN ACCESS TO YOUR ACCOUNTS BESIDES IF YOUR HARDWARE CRASHES IT IS A LOT EASIER TO RECOVER DATA IF YOU KNOW YOUR ACCOUNT NAME AND PASSWORD.
THINGS ARE GOING TO CHANGE IN YOU LIFE THE SICKER YOU HAVE TO MAKE LITTLE CHANGES THAT MAKE YOUR LIFE EASIER. CHANGE NUMBER ONE WHEN YOU ARE BITCHING OUT A MANAGER OF YOUR LOCAL MARKET BECAUSE DO NOT HAVE ECO FRIENDLY CARRY OUT BAGS AND HAVE NOT HAD THEM FOR SEVERAL WEEKS YOUR NOT SUPOSED TO START CRYING. TIME FOR ME TOSTART TAKING ANTI-DEPRESENTS. CHANGE NUMBER TWO MEN EVERY WHERE ARE FAMOUS FOR THEIR INABILITY TO GET ALL OF THE PEE IN THE PROPER PLACE. LAST NIGHT I PEED ON MY OWN FOOT SO FROM NOW ON I AM GOING TO SIT DOWN TO TAKE CARE OF MY BUSINESS.CHANGE NUMBER THREE I AM GOING TO SHUT MY PHONE OFF WHEN I AM DRIVING I NO IT IS WRONG AND DANGEROUS TO TALK ON THE PHONE SANS BLUE TOOTH AND THE ONLY BLUE TOOTH I GAN FIND WHICH WILL WORK WITH MY PHONE COSTS ABOUT FIFTEEN DOLLARS ON THE PHONE. I WAS ABLE TO GET SOMEONE FROM THE MAYORS OFFICE TO READ THIS BLOG ALSO FROM SENATOR REIDS OFFICE
IN CLOSING I HAVE GOT SOME REAL HELP FROM OFFICE FOR CONSUMER HEALTH ASSISTANCE WHICH HAS SET ME UP APPOINTMENTS TO OBTAIN LOCAL HELP IMMEDIATELY AND AN ADVOCATE TO HELP ME FILL OUT THE 64 PAGE OPUS THAT QUALIFIES YOU AND YOUR FAMILY FOR AFFORDABEL INSURANCE ACT MOSTLY KNOWN BY ITS ALIAS OBAMA CARE. I ONLY HAVE TO CONFIRMATION SOURCES FOR THIS NEXT STATEMENT ACCORDING TO HER FROM A STORY SHE HEARD ON CNN UNDER CERTAIN CONDITIONS IT WILL PAY FOR HAIR TRANSPLANTS. IF ANYONE OUT THERE CAN CONFIRM OR DISMISS THIS DROP ME A NOTE. FINALLY TO THE HACKER OUT THERE WHO CAUSED ALL THE DAMAGE TO MY DESKTOP SHAME ON YOU
DEAD MAN OUT
the subject of todays’post is things you should have in your wallet when you leave or in your pocket. first is a laminated list of the medication you take the pertinent facts about that medication such as when you take it. I personally take all my medical records so the hospital you are currently staying at will not be able to run up the bill and tell you they had to find out for you in simple terms if the alternator is out in your car you do not need anyone checking your brakes. I keep mine attached to my key ring which I am not going anywhere with out. I keep a second copy on a different zip drive just in case I lose on a consistent basis. before you down load anything that my allow some degenerate to steal your identity they have lots of information like that on your medical records like social security numbers, age, address leave that stuff in there is like leaving your front door open. If you are goofy from the meds you take, or in too much pain or do not have the computer skills to perform the task negotiate with a family member or some 12 year old who I can guaranty knows how to do it if you give them money it is well spent money because they will just set the word processing program they are using to look for certain words and phrases and deletes easy peasy I on occasion have been to a gaming establishment where they give you a card to put in what ever video device you have chosen to squaner you money on. I took the card off attached my keys and zip drive to one end and the other to my person makes it much harder to lose stuff that is secured to your self. The other thing you can do is go to the local home depot and get one of those devices that janitors use the world over use to keep track of the ginormous set of keys they are compelled to carry with them. They are long enough to reach the keyhole in your ride and there even harder to lose they also are between seven to ten dollars. Keep the receipt becasue no matter what they cost in about a year and your going to want to take them back. If things are not going your way try groaning and asking for a chair, can not hurt Make sure you talk to the person where there is a lot of customers passing by. It is not worth the aggravation to most them. EAD MAN OUT
in closing I some how screwed up the you tube link when I get it fix I will re post having had some serious malware issues I went about changing passwords and managed to lock my self out of my main wingnut49@hotmail account my back account is firstname.lastname@example.org
I JUST FINISHED MY FIRST YOU TUBE VIDEO IT IS MEANT TO AMUSE AND LET YOU ALL A LITTLE FARTHER IN THE HEAD OF WINGNUT49. I ENJOYED MAKING IT i I HOPE YOU ENJOY WATCHING IT http://www.youtube.com/timedtext?tab=act&action_view=1&smsg=2&v=ocMfrWflwEk